Mayo Healthcare and Social Media Summit: Interview with Colleen Young, Community Director for Mayo Clinic Connect’s Online Patient Community

First published November 10, 2016

Colleen Young (@colleen_young on Twitter) is the Community Director of Mayo Clinic Connect, an online community for patients and their loved ones to connect with others experiencing illness. Mayo Clinic Connect is  a unique platform that also educates users about their conditions, and has regular input fromMayo Clinic doctors and other healthcare professionals.

Colleen is also the founder of Health Care Social Media Canada (@hcsma or #hcsma on Twitter). She has conducted extensive academic research into the potential of social media to help along a patient’s journey through illness. She kindly took time to answer questions about her experiences in the lead-up to the Mayo Healthcare and Social Media Summit in Melbourne, where she’ll be speaking next week.


Colleen Young, Community Director of Mayo Clinic Connect. Pic courtesy of Colleen Young.

How has social media transformed healthcare? 

The connectivity that the social web has afforded people is the single biggest innovation in healthcare.

It’s taken away the terminal illness of isolation, brought people together so they can learn, recognise their knowledge and share with others. This is true for providers, policy makers, researchers, educators as well as patients and family caregivers.


What’s the biggest advice you would give healthcare startup founders or clinicians who want to build a community for their patients or users?

Technology alone does not create community. To effectively connect people, foster discussions that build relationships and create circles of trust requires a human commitment. Many recognise the potential of online communities to affect change, such as provide support and reduce isolation, improve health, change a health behaviour or to even drive research or change policies. But behind every successful community is a leader or team of people that helps nurture the community and to constantly calibrate the fine balance between growth, activity and sense of community.


Mayo Clinic Connect. Pic courtesy of Mayo Clinic and Colleen Young

How can the risk of misinformation amongst patient communities be reduced? What are your thoughts on the best ways to moderate patient communities within hospitals, clinics, private Facebook groups or healthtech apps? 

Many health organisations are concerned about disclosure of personal health or other sensitive information and the proliferation of misinformation. However, if your community has clear policies, proactive community management, as well as active moderation and community participation, these concerns are largely unfounded for online communities. Clearly stated policies make it easy for moderators to modify—and in some cases remove—posts that contravene terms of use, such as commercial postings, advertisements, or impersonations; posts that relate to illegal activity; those that contain disrespectful language, and so on.


Community managers, moderators, and core members model behaviour and can guide members who may have unwittingly shared sensitive information or misinformation. Such modelling establishes and maintains the desired tone of a community. Communities with a secure sense of community can rely on responsive self-policing to correct misguided behaviour and misinformation. In fact, rather than removing misguided information, allowing and enabling community members to correct misconceptions and provide balanced debate can be a very productive bonding opportunity that deepens the sense of community and establishes the value of collective knowledge. Undesirable behaviour does happen in online communities, but responsive community management can maintain the integrity, reliability, and value of the collective community knowledge. (Colleen has written more about this at her website.)

How comfortable were your clinical colleagues initially when Connect launched, and what helped to make them feel more at ease with patient Connect communities if there was unease?

Mayo Clinic has long been a leader in the use of social media. Connect was an extension of our social media presence. Clinicians and staff have readily embraced the patient-to-patient exchanges and strength of the community on Connect which underlines a core value at Mayo Clinic – patients are knowledgeable and participatory members of their health care and well being.

Connect presents a unique opportunity for clinicians to be invited into the patient conversations. All provider participation whether it be in the group discussionswebinars or blog pages, is done in concert with the patients.

Hear Colleen speak at the Mayo Healthcare and Social Media Summit in Melbourne, Australia next week. Tickets are available here

We also interviewed Simon Pase, Video Producer at the Royal Children’s Hospital, Melbournewho will also speak at the Summit.

We’re grateful to have been granted media access to the Summit.  

How Two Australian Medical Startups Are Inspired By Social Media

First published October 6, 2016

The power of communication is something that fascinates The Medical Startup.

Perhaps it’s our experience from looking after stroke patients who’ve lost the ability to speak.

From meeting patients who speak English as a second, third, fourth or even fifth language, and being awed at their skill.

From speaking with non-medical professionals who are trying to break into healthcare and learn healthcare’s language, and vice-versa.

Or from recognising how difficult it must be when an Australian doctor moves to work in a US hospital, and gets stumped by differences in common hospital terminology (read: ER versus ED; or in the UK, ICU vs ITU; or even paracetamol versus acetaminophen, which I encountered on a flight one day. Add in the accent difference, and you’ll see what we mean!).

This fascination with communication in medicine was what inspired us to connect with the Mayo Social Media Summit, which will be in Melbourne next month. Below are two Australian medtech startups founded by medical doctors, and how they’ve used social media with their apps.*

One through instant messaging, and one for the cancer journey. 

1. Bleep


Bleep‘s hashtag feature as inspired by social media. Free download on GooglePlay and the AppStore. Pic courtesy of MedSquared

Sydney-based medtech startup Bleep took a page from social media by cleverly including hashtags to group conversations within its clinician messaging system, and using the “@” system popular with Twitter and Instagram to directly contact particular team members looking after a patient.


Emergency Medicine doctor Joe Logan and co-founder Sarah Humphreys wanted to make messaging easier, secure and more efficient for healthcare workers within hospitals, residential care facilities and other clinical care centres. As Dr Logan explained, “At work, I receive texts, phone calls, emails and paper notes from members of the care team, making communication inefficient as it’s often between two parties rather than the multidisciplinary team.” Not to mention the confusion when a four-digit pager number is entered incorrectly and directed to the wrong person or team, wasting precious time in an emergency.

With Facebook and Twitter already on most peoples’ phones, this means Bleep takes a familiar practice from out-of-work communications to implement safer and better targeted messaging systems in clinical care.

2. CancerAid


CancerAid makes the cancer journey easier for patients, loved ones and healthcare professionals through several features including its Journal, Treatment diary, Opt-in Research, and Newsfeed. Pic courtesy of founder Dr Nik Pooviah

Another Australian startup, CancerAid, has successfully used storytelling and community-building to help humanise the earth-shattering cancer experience for would-be users of their app.

Founder and Radiation Oncology registrar Dr Nikhil Pooviah was struck with his CancerAid Awards inspiration one day as the app was preparing for its soft launch on the AppStore. (Stay tuned for Android news.) Celebrating the victories of cancer patients, oncology researchers, charity fundraisers, and others in the Oncology world, CancerAid’s growing reach speaks volumes about the power of sharing experiences to help deal with a tremendous burden of illness.

CancerAid‘s Symptoms Journal solves the memory recall problem encountered by patients and care providers in clinics worldwide, allowing better tracking of side-effects and other problems. Pic courtesy of CancerAid

Furthermore, CancerAid’s Awards and Championsconcept empowers users to treat the cancer journey not as a setback, but as a temporary hurdle, a race of sorts, with a Winning mindset from the start.

What strategies do you use involving social media with your healthcare solution? Leave a comment below or Contact Us if you want to share privately.

The Mayo Social Media Summit is for anyone interested in how social media can help solve problems in healthcare. They also run a course for medical professionals navigating social media. Tickets for the Summit in Melbourne are available here. 

*The startups listed are not affiliated with the Mayo Clinic. If you’re interested in learning more about either startup or enquiring about trialling either at your hospital/clinic/service, contact them at the links in this article. Both Bleep and CancerAid are currently available on the AppStore for free download.  Bleep is also on GooglePlay.